Caregiver Burden of Patients With Huntington's Disease in South Korea
DC Field | Value | Language |
---|---|---|
dc.contributor.author | Lee, Chan Young | - |
dc.contributor.author | Shin, Chaewon | - |
dc.contributor.author | Hwang, Yun Su | - |
dc.contributor.author | Oh, Eungseok | - |
dc.contributor.author | Kim, Manho | - |
dc.contributor.author | Kim, Hyun Sook | - |
dc.contributor.author | Chung, Sun Ju | - |
dc.contributor.author | Sung, Young Hee | - |
dc.contributor.author | Yoon, Won Tae | - |
dc.contributor.author | Cho, Jin Whan | - |
dc.contributor.author | Lee, Jae-Hyeok | - |
dc.contributor.author | Kim, Han-Joon | - |
dc.contributor.author | Chang, Hee Jin | - |
dc.contributor.author | Jeon, Beomseok | - |
dc.contributor.author | Woo, Kyung Ah | - |
dc.contributor.author | Koh, Seong-Beom | - |
dc.contributor.author | Kwon, Kyum-Yil | - |
dc.contributor.author | Moon, Jangsup | - |
dc.contributor.author | Kim, Young Eun | - |
dc.contributor.author | Lee, Jee-Young | - |
dc.date.accessioned | 2024-03-26T12:30:19Z | - |
dc.date.available | 2024-03-26T12:30:19Z | - |
dc.date.issued | 2024-01 | - |
dc.identifier.issn | 2005-940X | - |
dc.identifier.issn | 2093-4939 | - |
dc.identifier.uri | https://scholarworks.bwise.kr/gachon/handle/2020.sw.gachon/90810 | - |
dc.description.abstract | Objective This is the first prospective cohort study of Huntington's disease (HD) in Korea. This study aimed to investigate the caregiver burden in relation to the characteristics of patients and caregivers. Methods From August 2020 to February 2022, we enrolled patients with HD from 13 university hospitals in Korea. We used the 12-item Zarit Burden Interview (ZBI-12) to evaluate the caregiver burden. We evaluated the clinical associations of the ZBI-12 scores by linear regression analysis and investigated the differences between the low-and high-burden groups.Results Sixty-five patients with HD and 45 caregivers were enrolled in this cohort study. The average age at onset of motor symptoms was 49.3 +/- 12.3 years, with an average cytosine-adenine-guanine (CAG)n of 42.9 +/- 4.0 (38-65). The median ZBI-12 score among our caregivers was 17.6 +/- 14.2. A higher caregiver burden was associated with a more severe Shoulson-Fahn stage (p = 0.038) of the patients. A higher ZBI-12 score was also associated with lower independence scale (B = -0.154, p = 0.006) and functional capacity (B =-1.082, p = 0.002) scores of patients. The caregiving duration was longer in the high-than in the low-burden group. Caregivers' demographics, blood relation, and marital and social status did not affect the burden significantly.Conclusion HD patients' neurological status exerts an enormous impact on the caregiver burden regardless of the demographic or social status of the caregiver. This study emphasizes the need to establish an optimal support system for families dealing with HD in Korea. A future longitudinal analysis could help us understand how disease progression aggravates the caregiver burden throughout the entire disease course. | - |
dc.format.extent | 8 | - |
dc.language | 영어 | - |
dc.language.iso | ENG | - |
dc.publisher | KOREAN MOVEMENT DISORDERS SOC | - |
dc.title | Caregiver Burden of Patients With Huntington's Disease in South Korea | - |
dc.type | Article | - |
dc.identifier.wosid | 001103915200001 | - |
dc.identifier.doi | 10.14802/jmd.23134 | - |
dc.identifier.bibliographicCitation | JOURNAL OF MOVEMENT DISORDERS, v.17, no.1, pp 30 - 37 | - |
dc.description.isOpenAccess | Y | - |
dc.identifier.scopusid | 2-s2.0-85184467483 | - |
dc.citation.endPage | 37 | - |
dc.citation.startPage | 30 | - |
dc.citation.title | JOURNAL OF MOVEMENT DISORDERS | - |
dc.citation.volume | 17 | - |
dc.citation.number | 1 | - |
dc.type.docType | Article | - |
dc.publisher.location | 대한민국 | - |
dc.subject.keywordAuthor | Huntington's disease | - |
dc.subject.keywordAuthor | Caregiver burden | - |
dc.subject.keywordAuthor | Prospective cohort | - |
dc.subject.keywordAuthor | Independency | - |
dc.subject.keywordAuthor | Functional capacity | - |
dc.subject.keywordPlus | DEMENTIA | - |
dc.subject.keywordPlus | INTERVENTION | - |
dc.subject.keywordPlus | SYMPTOMS | - |
dc.relation.journalResearchArea | Neurosciences & Neurology | - |
dc.relation.journalWebOfScienceCategory | Clinical Neurology | - |
dc.description.journalRegisteredClass | scie | - |
dc.description.journalRegisteredClass | scopus | - |
dc.description.journalRegisteredClass | kci | - |
Items in ScholarWorks are protected by copyright, with all rights reserved, unless otherwise indicated.
1342, Seongnam-daero, Sujeong-gu, Seongnam-si, Gyeonggi-do, Republic of Korea(13120)031-750-5114
COPYRIGHT 2020 Gachon University All Rights Reserved.
Certain data included herein are derived from the © Web of Science of Clarivate Analytics. All rights reserved.
You may not copy or re-distribute this material in whole or in part without the prior written consent of Clarivate Analytics.