Supportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: Ascoping review
DC Field | Value | Language |
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dc.contributor.author | Oh, Juyeon | - |
dc.contributor.author | Kim, Jung A. | - |
dc.date.accessioned | 2022-07-12T20:44:36Z | - |
dc.date.available | 2022-07-12T20:44:36Z | - |
dc.date.created | 2021-05-12 | - |
dc.date.issued | 2017-12 | - |
dc.identifier.issn | 0962-1067 | - |
dc.identifier.uri | https://scholarworks.bwise.kr/hanyang/handle/2021.sw.hanyang/151066 | - |
dc.description.abstract | Aims and objectives To identify the supportive care needs of amyotrophic lateral sclerosis/motor neuron disease patients and their caregivers, categorise and summarise them into a Supportive Care Needs Framework and identify gaps in literature. Background Little is known about the supportive care needs of amyotrophic lateral sclerosis/motor neuron disease patients and their caregivers, and this subject has not previously been systemically reviewed. Design Scoping review. Methods We conducted a scoping review from the MEDLINE, EMBASE, CINAHL and Cochrane databases for the period January 2000–July 2016, using the following inclusion criteria: (i) written in English only, (ii) published in peer-reviewed journals, (iii) at least part of the research considered the supportive care needs perspective of amyotrophic lateral sclerosis/motor neuron disease patients or their caregivers and (iv) the population sample included patients of amyotrophic lateral sclerosis/motor neuron disease or their caregivers. Results Thirty-seven articles were included. Our review shows that amyotrophic lateral sclerosis/motor neuron disease patients and their caregivers’ supportive care needs were mentioned across all seven domains of the Supportive Care Needs Framework. Most common were practical needs (n = 24), followed by Informational needs (n = 19), Social needs (n = 18), Psychological needs (n = 16), Physical needs (n = 15), Emotional needs (n = 13) and Spiritual needs (n = 8). Conclusion From the perspectives of amyotrophic lateral sclerosis/motor neuron disease patients and their caregivers, there is a significant need for more practical, social, informational, psychological, physical, emotional and spiritual support. Relevance to clinical practice The Supportive Care Needs Framework has potential utility in the development of patient-centred support services or healthcare policies and serves as an important base for further studies; especially, specific examples of each supportive care needs domain can guide in clinical settings when healthcare professionals provide multidisciplinary care to amyotrophic lateral sclerosis/motor neuron disease patients and individualised care. | - |
dc.language | 영어 | - |
dc.language.iso | en | - |
dc.publisher | WILEY | - |
dc.title | Supportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: Ascoping review | - |
dc.type | Article | - |
dc.contributor.affiliatedAuthor | Kim, Jung A. | - |
dc.identifier.doi | 10.1111/jocn.13945 | - |
dc.identifier.scopusid | 2-s2.0-85028612007 | - |
dc.identifier.wosid | 000416319600030 | - |
dc.identifier.bibliographicCitation | JOURNAL OF CLINICAL NURSING, v.26, no.23-24, pp.4129 - 4152 | - |
dc.relation.isPartOf | JOURNAL OF CLINICAL NURSING | - |
dc.citation.title | JOURNAL OF CLINICAL NURSING | - |
dc.citation.volume | 26 | - |
dc.citation.number | 23-24 | - |
dc.citation.startPage | 4129 | - |
dc.citation.endPage | 4152 | - |
dc.type.rims | ART | - |
dc.type.docType | Review | - |
dc.description.journalClass | 1 | - |
dc.description.isOpenAccess | N | - |
dc.description.journalRegisteredClass | scie | - |
dc.description.journalRegisteredClass | ssci | - |
dc.description.journalRegisteredClass | scopus | - |
dc.relation.journalResearchArea | Nursing | - |
dc.relation.journalWebOfScienceCategory | Nursing | - |
dc.subject.keywordPlus | PALLIATIVE CARE | - |
dc.subject.keywordPlus | FAMILY CAREGIVERS | - |
dc.subject.keywordPlus | ALS | - |
dc.subject.keywordPlus | PEOPLE | - |
dc.subject.keywordPlus | EXPERIENCES | - |
dc.subject.keywordPlus | SERVICES | - |
dc.subject.keywordPlus | PROVISION | - |
dc.subject.keywordPlus | BURDEN | - |
dc.subject.keywordPlus | LIFE | - |
dc.subject.keywordPlus | PERSPECTIVES | - |
dc.subject.keywordAuthor | amyotrophic lateral sclerosis | - |
dc.subject.keywordAuthor | caregiver | - |
dc.subject.keywordAuthor | health service needs | - |
dc.subject.keywordAuthor | motor neuron disease | - |
dc.subject.keywordAuthor | review | - |
dc.subject.keywordAuthor | scoping review | - |
dc.subject.keywordAuthor | supportive care | - |
dc.identifier.url | https://onlinelibrary.wiley.com/doi/10.1111/jocn.13945 | - |
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