일차 흉터형성탈모 환자의 질환 인식수준, 의료 이용행태, 진단 및 치료 현황, 삶의 질 및 동반 질환: 국내 다기관 설문조사 연구
DC Field | Value | Language |
---|---|---|
dc.contributor.author | 송서원 | - |
dc.contributor.author | 이동건 | - |
dc.contributor.author | 강훈 | - |
dc.contributor.author | 유박린 | - |
dc.contributor.author | 최지웅 | - |
dc.contributor.author | 권오상 | - |
dc.contributor.author | 이양원 | - |
dc.contributor.author | 김범준 | - |
dc.contributor.author | 이영 | - |
dc.contributor.author | 박진 | - |
dc.contributor.author | 김문범 | - |
dc.contributor.author | 김도영 | - |
dc.contributor.author | 김상석 | - |
dc.contributor.author | 박병철 | - |
dc.contributor.author | 이상훈 | - |
dc.contributor.author | 최광성 | - |
dc.contributor.author | 신현태 | - |
dc.contributor.author | 허창훈 | - |
dc.contributor.author | 장용현 | - |
dc.contributor.author | 서수홍 | - |
dc.contributor.author | 전지현 | - |
dc.contributor.author | 박현선 | - |
dc.contributor.author | 원종현 | - |
dc.contributor.author | 김민성 | - |
dc.contributor.author | 노병인 | - |
dc.contributor.author | 이지현 | - |
dc.contributor.author | 이지혜 | - |
dc.contributor.author | 유동수 | - |
dc.contributor.author | 우유리 | - |
dc.contributor.author | 김효진 | - |
dc.contributor.author | 김정은 | - |
dc.date.accessioned | 2024-06-14T05:30:38Z | - |
dc.date.available | 2024-06-14T05:30:38Z | - |
dc.date.issued | 2024-05 | - |
dc.identifier.issn | 0494-4739 | - |
dc.identifier.uri | https://scholarworks.bwise.kr/cau/handle/2019.sw.cau/74184 | - |
dc.description.abstract | Background: Primary cicatricial alopecia (PCA) is a rare disease that causes irreversible destruction of hair follicles and affects the quality of life (QOL). Objective: We aimed to investigate the disease awareness, medical use behavior, QOL, and real-world diagnosis and treatment status of patients with PCA. Methods: A self-administered questionnaire was administered to patients with PCA and their dermatologists. Patients aged between 19 and 75 years who visited one of 27 dermatology departments between September 2021 and September 2022 were included. Results: In total, 274 patients were included. The male-to-female ratio was 1:1.47, with a mean age of 45.7 years. Patients with neutrophilic and mixed PCA were predominantly male and younger than those with lymphocytic PCA. Among patients with lymphocytic PCA, lichen planopilaris was the most common type, and among those with neutrophilic PCA, folliculitis decalvans was the most common type. Among the total patients, 28.8% were previously diagnosed with PCA, 47.0% were diagnosed with PCA at least 6 months after their first hospital visit, 20.0% received early treatment within 3 months of disease onset, and 54.4% received steady treatment. More than half of the patients had a moderate to severe impairment in QOL. Topical/intralesional steroid injections were the most common treatment. Systemic immunosuppressants were frequently prescribed to patients with lymphocytic PCA, and antibiotics were mostly prescribed to patients with neutrophilic PCA. Conclusion: This study provides information on the disease awareness, medical use behavior, QOL, diagnosis, and treatment status of Korean patients with PCA. This can help dermatologists educate patients with PCA to understand the necessity for early diagnosis and steady treatment. | - |
dc.format.extent | 12 | - |
dc.language | 한국어 | - |
dc.language.iso | KOR | - |
dc.publisher | 대한피부과학회 | - |
dc.title | 일차 흉터형성탈모 환자의 질환 인식수준, 의료 이용행태, 진단 및 치료 현황, 삶의 질 및 동반 질환: 국내 다기관 설문조사 연구 | - |
dc.title.alternative | Disease Awareness, Medical Use Behavior, Diagnosis and Treatment Status, Quality of Life and Comorbidities in Primary Cicatricial Alopecia Patients: A Multicenter Survey | - |
dc.type | Article | - |
dc.identifier.bibliographicCitation | 대한피부과학회지, v.62, no.4, pp 206 - 217 | - |
dc.identifier.kciid | ART003081551 | - |
dc.description.isOpenAccess | N | - |
dc.identifier.scopusid | 2-s2.0-85197618447 | - |
dc.citation.endPage | 217 | - |
dc.citation.number | 4 | - |
dc.citation.startPage | 206 | - |
dc.citation.title | 대한피부과학회지 | - |
dc.citation.volume | 62 | - |
dc.publisher.location | 대한민국 | - |
dc.subject.keywordAuthor | Alopecia | - |
dc.subject.keywordAuthor | Surveys and questionnaires | - |
dc.subject.keywordAuthor | Questionnaire | - |
dc.description.journalRegisteredClass | scopus | - |
dc.description.journalRegisteredClass | kci | - |
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