Factors Affecting Research Participation of Bereaved Families of Terminal Cancer Patients: A Prospective Preliminary Study
- Authors
- 김예원; Yuntaek Lee; 황인철; 황선욱; Hyo Min Kim; 심재용; 최윤선; 이용주
- Issue Date
- Sep-2016
- Publisher
- 한국호스피스완화의료학회
- Keywords
- Bereavement; Neoplasms; Hospice care; Family; Surveys and questionnaires; 사별; 종양; 호스피스; 가족; 설문조사
- Citation
- 한국호스피스완화의료학회지, v.19, no.3, pp.233 - 239
- Journal Title
- 한국호스피스완화의료학회지
- Volume
- 19
- Number
- 3
- Start Page
- 233
- End Page
- 239
- URI
- https://scholarworks.bwise.kr/gachon/handle/2020.sw.gachon/9216
- DOI
- 10.14475/kjhpc.2016.19.3.233
- ISSN
- 1229-1285
- Abstract
- Purpose: Little is known regarding the factors associated with the willingness of family caregivers of terminal cancer patients to participate in a bereaved survey. This study aimed to ascertain the pre-loss factors that predict actual participation in a bereaved survey. Methods: We conducted a prospective observational study using data from two multi-center surveys at the end-of-life and after loss. In order to identify the pre-loss factors associated with participating in the bereaved survey, we used a step-wise multivariate logistic regression analysis. Results: Among 185 bereaved individuals, 30 responded to the survey (response rate: 16.2%). There were differences between the participation group and the non-participation group regarding religion, economic status, and perceived quality of care as assessed by the Quality Care Questionnaire-End of Life. A final multivariate model revealed that bereaved individuals who professed a religion (adjusted odds ratio [aOR]=5.01; P=0.008), had a high income (aOR=4.86, P=0.003), and satisfied with the care for familial relationship (aOR=4.49, P=0.003) were more likely to engage in the bereaved survey. Conclusion: Our finding suggests that improving the quality of end-of-life care may promote actual participation in a bereaved survey through easing post-loss distress. More attention should also be paid to those bereaved individuals who are hesitant to participate in a bereaved survey.
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