Impact of inflammatory bowel disease on daily life: an online survey by the Korean Association for the Study of Intestinal Diseases
- Authors
- Kim, Young Sun; Jung, Sung-Ae; Lee, Kang-Moon; Park, Soo Jung; Kim, Tae Oh; Choi, Chang Hwan; Kim, Hyun Gun; Moon, Won; Moon, Chang Mo; Song, Hye Kyoung; Na, Soo-Young; Yang, Suk-Kyun
- Issue Date
- Jul-2017
- Publisher
- 대한장연구학회
- Keywords
- Inflammatory bowel disease; Crohn disease; Colitis; ulcerative; Quality of life; Surveys and questionnaires
- Citation
- Intestinal research, v.15, no.3, pp 338 - +
- Journal Title
- Intestinal research
- Volume
- 15
- Number
- 3
- Start Page
- 338
- End Page
- +
- URI
- https://scholarworks.bwise.kr/sch/handle/2021.sw.sch/7429
- DOI
- 10.5217/ir.2017.15.3.338
- ISSN
- 1598-9100
2288-1956
- Abstract
- Background/Aims: Inflammatory bowel disease (IBD) is a chronic disabling gastrointestinal disorder that diminishes the quality of life of the affected individuals. Limited data are available regarding the impact of IBD on the daily life of Koreans. Methods: Self-administered, computer-aided, internet-based questionnaires were distributed to members of a Korean patient organization for IBD from March to April 2013, by the Korean Association for the Study of Intestinal Diseases. Results: A total of 599 patients with IBD (387 with Crohn's disease [CD] and 212 with ulcerative colitis [UC]) were enrolled. The majority of patients (81%) expressed feelings of fatigue, weakness, and being worn out in their daily lives during times of flare; this percentage was reduced to 61% during remission. Respondents were absent from work or school for an average period of 18 days because of illness, within the first 6 months; the majority of respondents (64%) felt stressed about their absence. Forty-six percent of the respondents reported having received unfair comments at work, or having suffered discrimination. Forty-seven percent of the respondents felt that IBD had negatively affected their income and earnings. Compared with patients with UC, those with CD reported a more frequent negative impact of IBD on work, or more economic burden. More than half of the respondents (61%) reported that IBD had prevented them from making or keeping friends. Conclusions: IBD significantly impacts daily life, including work, education, and social relationships. Treatment that addresses the full spectrum of life of a patient would be more effective.
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