Detailed Information

Cited 42 time in webofscience Cited 44 time in scopus
Metadata Downloads

Discordance among patient preferences, caregiver preferences, and caregiver predictions of patient preferences regarding disclosure of terminal status and end-of-life choices

Authors
Shin, DW[Shin, Dong Wook]Cho, J[Cho, Juhee]Kim, SY[Kim, So Young]Chung, IJ[Chung, Ik Joo]Kim, SS[Kim, Sam Soo]Yang, HK[Yang, Hyung Kook]Ahn, E[Ahn, Eunmi]Park, BR[Park, Bo Ram]Seo, H[Seo, Hongwan]Park, JH[Park, Jong-Hyock]
Issue Date
Feb-2015
Publisher
WILEY-BLACKWELL
Keywords
concordance; disclosure; palliative care; communication; family; caregiver; cancer; oncology
Citation
PSYCHO-ONCOLOGY, v.24, no.2, pp.212 - 219
Indexed
SCIE
SSCI
SCOPUS
Journal Title
PSYCHO-ONCOLOGY
Volume
24
Number
2
Start Page
212
End Page
219
URI
https://scholarworks.bwise.kr/skku/handle/2021.sw.skku/44722
DOI
10.1002/pon.3631
ISSN
1057-9249
Abstract
BackgroundThe complexity of end-of-life (EOL) communication in cancer care is often increased by family caregivers, who frequently affect the information and decision-making process. We assessed cancer patient preferences (PP), family caregiver preferences (FCP), and family caregiver predictions of patient preferences (FCPPP) regarding the disclosure of terminal status, family involvement in the disclosure process, and EOL choices, and we evaluated the concordances among them. MethodsA national, multicenter, cross-sectional survey of 990 patient-caregiver dyads (participation rate=76.2%) was performed. A set of paired questionnaires was independently administered to patients and their caregivers. ResultsWhile patients and family caregivers had wide spectra of preferences, patients significantly preferred disclosure, direct disclosure by a physician, and palliative care options (all P<0.001). Family caregiver predictions were similar to PP with regard to terminal disclosure (P=0.35) but significantly different with regard to family involvement in the disclosure process and EOL choices (P<0.001). The concordances of PP and FCP (=0.08-0.13), and those of PP and FCPPP (=0.09-0.17), were poor. The concordances of FCP and FCPPP were fair to moderate (=0.35-0.67). Discrepancies between PP and FCP and between PP and FCPPP were associated with dysfunctional family communication. ConclusionsFamily caregivers do not generally concur with patients in their preferences, nor do they reliably predict PP. Open dialogue between patient and family caregivers would reduce the discrepancy. More emphasis on incorporating family caregivers in EOL communication is needed from clinical, research, and training perspectives. Copyright (c) 2014 John Wiley & Sons, Ltd.
Files in This Item
There are no files associated with this item.
Appears in
Collections
Samsung Advanced Institute for Health Sciences and Technology, SKKU > ETC > 1. Journal Articles

qrcode

Items in ScholarWorks are protected by copyright, with all rights reserved, unless otherwise indicated.

Related Researcher

Researcher CHO, JU HEE photo

CHO, JU HEE
Samsung Advanced Institute for Health Sciences and Technology, SKKU
Read more

Altmetrics

Total Views & Downloads

BROWSE