Future planning for individuals with intellectual and developmental disabilities: Perspectives of siblings in South Korea

Abstract

Background Future planning has emerged as a global issue for families of individuals with intellectual and developmental disabilities due to the longer lives and limited long-term services and supports in the adult disability system. While it has received greater attention, most future planning studies only included parents of individuals with intellectual and developmental disabilities within the context of European or American countries. The purpose of this study was to examine future planning among siblings of individuals with intellectual and developmental disabilities in South Korea. Method In this study, 185 Korean siblings of individuals with intellectual and developmental disabilities responded to a survey. Results Few siblings engaged in future planning activities and reported a range of barriers to conduct future planning. Further, greater future planning involvement was associated with older siblings, greater advocacy level and greater sibling caregiving. Conclusion For future research, culturally relevant measures and intervention should be addressed.